Infant Silent Reflux is NOT Silent – God is faithful, still.

Infant Silent Reflux Is NOT Silent: 5 Ways To Help Older Children Cope | thisgratefulmama.com

Watching our third baby suffer in pain from silent reflux is not any easier than with the first or second child.

A tiny baby writhing in pain, arching their back and screaming, red-faced until they have no more breath, is gut-wrenching for even the seasoned reflux parent.

Silent reflux is still awful.

While this time around we were more proactive in asking for and accepting help, daily, we were in the trenches, trying to soothe our hurting child. And, as I shared before, this time around, we also struggled to help our older children cope.

It was not easy for our children to watch their baby sister suffer either.

Many days, I sat back and observed how our entire family was affected by our baby’s pain. I often wonder why? Now when I say why, I don’t mean the science behind it – I actually understand that quite well by now.

No, I mean WHY?

Why would God allow a baby to suffer this way?

Why our children?

Why is this so hard?

Why isn’t He answering my prayers NOW?

My emotional response is to ask why, neglecting to go any deeper. Asking why only allows me to dwell in a dark place of mourning and frustration. It is not wrong to come to this place on occasion, but staying there long does only damage. There is no hope there, and as your little one suffers, trust me, you need all the hope you can get.

Like many injustices and suffering, we may never know why on this side of heaven, so dwelling there is not a fruitful endeavor.

Instead of asking why, I should be asking where God is as we walk through it.

I don’t know why He allowed this again, but I do know where God IS.

Right here.

With me. With my husband. With our baby. With our older kids.

He has not looked away even for even one second, even thought there were times we took our eyes off of Him.

God is not surprised that our baby has reflux.

He made her. Carefully. Without mistake.

God is allowing reflux to happen for a reason, even though I want it to be over without all the suffering.

I also need to ask WHAT is God doing?  

What is He teaching our family?

What is He working out in me?

What is He equipping me to do?

For now, it is evident He is teaching each member of our family to be more dependent on Him. He is teaching my husband and I to trust Him with each child He has given us, and to parent with His strength.

And to trust His perfect timing.

I am grateful that we have already seen Him work in this situation twice before – and He has an excellent track record. God never changes. I am confident He will work here too. I have already seen how He has used these experiences already to encourage other reflux families, just like I have seen Him work for good in our family’s life because of our son’s food allergies.

I expect Him to show up big here too.

God walks through all suffering with us – comforting, supporting, equipping, and carrying us through the worst of circumstances. He gently, lovingly guides us freely offering peace, kindness, love and forgiveness along the way.

From day one.

I admit, I do not agree with our baby suffering, but God’s character is good, regardless of our circumstance.

I trust Him and believe He will use this suffering for good. The countless hours spent fervently praying over our babies for relief have not been spent in vain, although I do wish He would answer those prayers now.

He answers all prayers in His timing. And I do trust His perfect timing and care. And that His ways are higher than my ways.

He knows the entire plan for my life, my family’s life, and this sweet baby. He is working for good, in something that feels only bad. The Bible is clear that God works for the good in ALL things of those who love Him – And I believe Him. And so I cling to this truth.

And we know that in all things God works for the good of those who love him, who have been called according to his purpose. Romans 8:28

He has shown Himself faithful to me and to each of our children.

So, while we walk through this, we keep our eyes fixed on Him. We expectantly wait for Him to make His presence known.

And every day, He does.

Because He is faithful, still.

 

*I CANNOT wait to share how God has worked in this situation already – our daughter has improved SO much since I started writing this in July. In the craziness of those days, I never published this – so here it is (With a few more posts to come explaining new lessons learned about infant reflux the third time around, and just how God’s timing was perfect in this situation).

Infant Silent Reflux Is Not Silent – 10 Survival Tips for Parents When Your Child Does NOT Sleep

Infant Silent Reflux Is Not Silent - 10 Survival Tips for Parents When Your Child Does NOT Sleep | thisgratefulmama.com

There are infants who sleep through the night right away, or even within a few months of bringing them home from the hospital.

We were not that family.

Read more about our experience with infant reflux:

As I’ve shared before, our firstborn had silent reflux. Acid burning, pain abounding…heartburn. In our experience, reflux is worse at night, and greatly affected his and our sleep.

When many parents say they had a hard night, it means the child was up a few times, perhaps staying awake for a (whole) hour, or that perhaps they were up at 4 am for the day. Let me be clear that I am not diminishing how this feels in the morning – tired is tired! But I think it is fairly safe to say most babies and parents manage one solid 2-4 hour stretch of sleep per night, most nights. They are tired, but are usually functional the next day.

When I say we had hard nights, I mean that most nights, he did not sleep. There were 3-5 hours stretches of crying and discomfort followed by a 40-minute nap. But even this short stretch was interrupted by writhing and painful screams.Then we repeated the crying and short nap, or he was up for the day. He did not sleep a 3-hour stretch until 10 months.

As his nursing mama, neither did I. And often, neither did my husband.

We tried everything. We held him, we tried walking, co-sleeping, swinging, bouncing, singing. In desperation we tried crying it out but it was short-lived and agonizing for mom and baby  – a hurting baby cannot self-soothe, nor should he have to.

Nothing worked.

We spoke to doctors, lactation specialists, other parents and read books, articles and blogs by sleep consultants. There were many great tips, but none helped our son sleep.

If you think that sleep-deprivation is hard on your body and mind, imagine how it affects a baby – they are supposed to sleep twice as much as we are!

He, and we were exhausted – a term I no longer use lightly.

After 10 months, his sleep ebbed and flowed along with his silent reflux symptoms until FINALLY at 15 months, he slept through the night. This too came and went, but his sleep generally improved so MOST nights were silent nights.

That is, until the reflux returned with vengeance when he was 2 1/2 and I was 7 months pregnant with our second baby. Then his sleep success derailed and we recognized old patterns of returning pain and chronic coughing. This was no sleep ‘regression’. It was sleep succession. But we will save the story of toddler reflux for another day…

Because our sleep experience was a struggle, my goal is to share how to survive – to endure, to wait for healing, and to do everything in your power to encourage sleep. But more importantly, my goal is to empathize, and encourage parents that sleep does come, even if not right away.

10 Survival Tips for Parents – When Your Child Does NOT Sleep

1. Schedule YOUR sleep

While parents may not need as much sleep as a newborn, they do need consistent sleep. When your child doesn’t sleep, sleeping when the baby sleep doesn’t work. Consistent sleep-deprivation has consequences. Parents need to make their own sleep a priority. Be creative. When our son was young, I worked. Some days I went home and slept for 2 hours before picking our son up from daycare. OR, I’d work a few longer days, and take off early on a slow day and sleep for (gasp) 3 hours! If you don’t have daycare as an option, read on…

2. Enlist help

While not all parents have volunteers to stay up at night with the baby so the parents can sleep, most have someone who will come during the day. Ask for help. And accept it when it is offered. Don’t be prideful. Don’t shrug it off. Sleep is necessary and important. Ask them to come over and snuggle your child. Be sure they understand your child might cry the whole time. Our son’s grandparents, aunts and uncles and our close friends were willing. We weren’t good at asking.

3. Be transparent

Nothing good will come from pretending everything is fine. Don’t sugar coat what is going on. While there is a fine line between explaining the facts and complaining, if you aren’t truthful and transparent, your sleep-less existence will be lonely, and without help. And, others will not understand why you suddenly traded your social life for sleep.

4. Request advice from professionals

Assuming you are already navigating reflux treatment, don’t neglect to see lack of sleep as a symptom that needs to be addressed. When sleep is this difficult, more than just a pediatrician may be needed. Request a consult with a GI doctor, ask for a sleep study, or meet with an occupational or sleep therapist.

5. Try new strategies

I cannot advocate the ‘cry it out’ method because we learned that a hurting baby cannot self-soothe. They hurt and need help. However, there are many other great options to try. It is a good idea to try different sleep positions, but instead of buying a bunch of rockers, swings, crib wedges or chairs, borrow them. Research them. We used a Nap Nanny (no longer sold, but this Dex DayDreamer™ Infant Sleeper is today’s equivalent product) with an angled back to help with reflux. It was the only place our son ever slept at all for most of the first year. Please note: the most important comment on these sleepers is to never place them in a crib. They are intended to use on the floor for baby’s safety. 

6. Join a support group

Did you know there are GERD support groups all over the world? You can find the Reflux Rebels or Reflux Support Group on Facebook. The Facebook groups are generally closed, which means only group members can see your posts. You will find people struggling with the same issues, encouragement, and wise advice from real-life experience.

7. Don’t wake the baby

If your baby does not sleep, DO NOT interrupt sleep for any reason. The theory that sleep begets sleep is true in our experience. There is no event more important than your child’s sleep if they NEVER sleep. Do your best to set conditions for sleep and then protect that schedule. If that means leaving early, coming late, or not attending something, SO BE IT.

8. Pray

The best comfort I found during this time was prayer. And scripture. It is no surprise to God that you are tired or struggling. He sees your child and He sees you. Let Him carry you, and trust that He will bring both healing and sleep in His time. AND, know that your struggle has purpose, even if you cannot see it yet. Trust His plan, purpose and promise that He is working in all things for good of those who love Him…

9. Hang on to hope

Our son struggled for much longer than we wanted him to. And there were days we thought he would never, ever sleep through the night. But he did. And now he sleeps hard, and well. Eventually, even your child will too.

10. Know you are not alone

Other moms have endured what you are enduring. Find them. They won’t waste your time with advice that won’t work, they’ll instead spend their time listening and encouraging. They will understand that not all problems can be fixed with a book, herbal remedy, fancy swing or sleep-training method and they will remind you that some problems  have to resolve with time.

 

Infant Silent Reflux is NOT Silent: My Experience Nursing and Caring for Our Hurting Son During His First Year

My Experience Nursing and Caring for Our Hurting Son During His First Year | thisgratefulmama.com

This is part one of two posts about nursing a hurting reflux baby. This post is simply to share my experience and struggle nursing and caring for our son who had silent reflux.

The purpose of part two is to encourage moms and equip those who support moms nursing hurting babies with knowledge of how to help. These women need your support and help; nursing a hurting child is no simple matter. In fact, nursing any child is often no simple matter.

If you are struggling with nursing, you are not alone.

It is no secret that our son had silent reflux as a baby. He never spit up – it burned both coming up and going back down when he swallowed it. Reflux medication did not eliminate his pain but merely took the edge off. This meant he hurt for most of his first year. For more about what silent reflux is, and how it is treated, read:

This story has taken longer to share because it is deeply personal and emotionally charged.

Many of those closest to me do not know the difficulty I had nursing and caring for our son, particularly during the first 3 months, and every night during the first year. Why? Telling the experience means recalling feelings of inadequacy, pain and failure that plagued my first year as a parent.

Nursing is ‘supposed to be the most natural thing’:

For me, it was not. It took a VERY long time to get the hang of it, even with multiple lactation consultations. It was physically painful for months. I felt scared, inadequate, guilty, and exhausted, but determined to figure it out. Failure was not an option.

Daytime Feeding:

During the day, he wanted to nurse constantly to soothe his burning throat. While spurts of cluster feeding are normal, this was extreme and constant. He would eat well but be frantic to nurse minutes later. While nursing, or passed out on my chest, he was somewhat calm – but his body never really relaxed.

Because he grew rapidly, his reflux medication dose was often too low for his body weight. During those transition times before his dose was increased, his nighttime symptoms, which we will discuss later, creeped into daytime. Those days and nights were truly a battle.

When I went back to work, I pumped and our daycare provider gave him bottles. For several months, he refused them and ate only as much as he had to at daycare. Then he cluster fed when I picked him up, and on weekends.  However, we were blessed when at 6 months, his daytime feedings finally became pretty regular.

Spacing feedings out:

We sought help for the constant nursing. We saw lactation and our pediatrician. They both encouraged us to space feedings out. I wanted to, and we tried. We held him as he slept, even as our limbs went numb. We tried everything to soothe him and lengthen the time between sessions. The most effective way was to hold him and do DEEP squats. Up, down, up, down, – until our legs and backs gave out. My poor husband often came home to a sweaty wife who could hardly stand up. It was not my best time. Squats – all day, every day. During maternity leave, we barlely made 1 hour between feeding start times, and we did everything physically possible to space them out.

The physical toll:

Keeping up with nursing demands during maternity leave was physically exhausting. When I should have been recovering from having a baby, I was doing continuous squats with little or no sleep (when I say no sleep, I mean actually NO sleep). The constant nursing was physically painful and draining. And I made so many mistakes – like failing to ask for more help. And not getting up to eat or drink water between each feeding because I was too exhausted and afraid to move. This left me often dehydrated, leading to other physical problems I won’t detail here. I did my best to eat healthy, despite cutting problem reflux foods (ALL dairy, citrus, beans, broccoli, etc.).

The lack of sleep and physical demands during maternity leave did NOT help recovery from labor and delivery. I was still not recovered at 12 weeks when I returned to work. At 6 months, I went back to the doctor, still in discomfort and pain. I was told it was from lack of sleep and rest for my body. Stress – it really does take a toll on the body.

Nighttime Feeding:

From 7 pm until morning, the reflux caused a different problem for the firs year. He was desperate to nurse, frantic. He began to eat, but suddenly it was like someone pinched him – his body stiffened and fists clenched. He threw his head back and the scream from his tiny body would shatter my heart as he tore his mouth away from my chest (ouch).  The wail continued, rattling until no breath was left and his face turned beet-red. We tried bottles and pacifiers. He refused. When he took a bottle at night, it too resulted in pain.

So we did our best to soothe him. Arms and backs exhausted after an hour or so, I would give in and nurse him. Still frantic, then the few moments of calm would be shattered by painful screams until finally he would pass out. Afraid to move, I held him until I got up the nerve to tiptoe upstairs to try to lay him down. If the floor creaked, or he was moved in any way, he would wake in pain. Rarely could he be transferred from my arms. Often, I stayed on the couch, holding him while he slept while trying to rest my eyes. Even sleeping, he cried out in pain, limbs flailing. I always prayed he would stay asleep, but he wouldn’t. He slept for 40 minutes, followed by a few hours of squats and pacing.

Most nights, my husband would find me weeping in a puddle and take over.

We did that every night of maternity leave and most nights the first year. He did not sleep even ONE 2 or 3 hour stretch until 6 months. Thereafter it was infrequent. He did not sleep through the night until 15 months and did not sleep well during the night until two and half. This child was in serious pain. He was doing the best he could.

Isolation: 

Because he was so upset between feedings, it was not feasible to get out of the house during maternity leave. He screamed, writhing in pain in the car and anywhere we went. We paced church hallways with a screaming child, and literally sprinted to get through Target. It was so stressful, it just wasn’t worth it.

With the snowy winter weather and screaming, we did not get out much. It was impossible to nurse around others because he would writhe and flail in discomfort as he nursed. I ended up locked in a bedroom nursing him at family events. Alone. During the day, I was too afraid to wake him, or too exhausted to talk on the phone. I quickly lost touch with many friends. I was incredibly lonely. I cannot express my gratitude to my husband, family, and a few close, persistent friends who lovingly stuck by my side.

The Emotional Toll:

The screams rattled me to the core. He was in pain and it was my job to comfort him. The one thing, nursing, that was supposed to soothe him, hurt him. I felt inadequate and like it was my fault, even though knew it wasn’t. I was failing him and could not fix this problem. At night, I became unable to sleep when he was. Since he refused bottles, I was in demand all the time. Any noise would jerk me fom sleep – wide awake, adrenaline pumping while praying he would keep sleeping. I was anxiety-ridden. I worshipped sleep but it eluded me as I pleaded and prayed to God first for relief for our son and then for sleep.

After 1-2 hours of non-consecutive sleep per night, I was a walking zombie. Looking back, I cannot believe I did not lose my job. I was underproductive and cranky. My boss and coworkers were understanding and helpful despite my edgy demeanor. I felt guilty for feeling relieved when I dropped him off at daycare and for enjoying time sitting in a quiet lab alone with my hands free. Every invitation from friend and family that required me to do something other than take care of our son, work, or sleep became overwhelming. I had no energy for anything else. Overwhelmed is a great way to describe how I felt that year.

Any physical pain from his abrupt motions and continual schedule were nothing compared to the emotional pain of not being able to help him. When I went back to the doctor at 6 months, they did a postpartum depression screening.  I answered how I thought I should. I look back now and see my shame that I wasn’t handling things well. At the time, I was afraid and unable to admit the truth to myself. At 10 months, I heard a woman from church talk about her struggles as a new mom. It finally gave me the courage to admit my need for help to my husband, and then to a doctor. I sobbed taking the depression survey and while explaining how poorly I was coping with sleep deprivation, stress of night feedings and daily life. The floodgates opened. I got help.

Much to be grateful for:

I was not alone, and neither are you. We all need support and help – don’t be ashamed to ask for it. My mom, sister and mother-in-law helped as much as they could. They drove across town countless times to bring food and to hold our son while praying over him so I could rest for a couple hours. He would often scream the whole time, refusing the pacifier and bottle. They did their best to soothe him. I am SO grateful for their help. He wore those loving arms out but they kept coming back

Our church small group blessed us with what I like to call ‘the parade of meals and encouragement’. Our close friends and family encouraged us, prayed for us, and were so gracious with me even though I was not able to be a good friend. They loved me anyway.

My husband did more squats than me and endured sleepless nights alongside me. Emotionally, he fared better than me and was my rock. He comforted, encouraged, and was unbelievably kind and gentle, even when I failed to be able to support him at all. We were a very tired mess but we were a team. I would have quit nursing if my husband hadn’t been my champion. If you support a mom who nurses ANY child, do not doubt that YOU play an important role!

God carried me through:

Psalm 63 became precious to me during that first year. My son’s name is written next to it in every Bible I own. I clung to these words in the middle of the night, calling out to my faithful Father on behalf of our son. HE was my ultimate help. The only way I made it through was by His grace and strength. Looking back, I see His good, strong hand carrying me through each and every night. He will carry you too, if you let Him.

You, God, are my God, earnestly I seek you; I thirst for you, my whole being longs for you, in a dry and parched land where there is no water.
I have seen you in the sanctuary and beheld your power and your glory.
Because your love is better than life, my lips will glorify you.
I will praise you as long as I live, and in your name I will lift up my hands.
I will be fully satisfied as with the richest of foods; with singing lips my mouth will praise you.
On my bed I remember you; I think of you through the watches of the night.
Because you are my help, I sing in the shadow of your wings.
I cling to you; your right hand upholds me.
Psalm 63:1-8 (NIV, emphasis added)

The JOY:

No matter how little we slept, the mornings were our son’s best moments of the day. It was certainly the time when reflux hurt the least. Smiles and giggles flowed freely for those precious moments. My husband and I often waited to enter his room together so no one would miss a second of that joy.  These moments gave us real, tangible hope.

There is no difficulty or number of sleepless nights that could ever steal our love for our son. He is a priceless gift. I cherish his first year, regardless of the struggle. He was the joy of my day and being his mom is a blessing that challenges me and brings more fulfillment and joy than I could have ever imagined. Because we all struggled, I think we felt the excitement of new skills and successes even more strongly.

Please do not take any of this post as a complaint. It isn’t. I do wish our son had not been in pain, but he was. Wishing it had been different serves no purpose. The experience is part of who we are, as individuals and as a family. And so much good came from it. We were strengthened and our relationships grew in beautiful ways as we weathered it together. It made us more reliant on God and deepened our trust and faith. It equipped us to share our experience with other families dealing with similar issues. I am amazed by the number of families we have been able to support and encourage because of our experience. These are not small blessings, and we do not take them for granted. And, we are grateful our son, now 5, no longer struggles with reflux. There is hope yours won’t either.

 

To the Sleep-Deprived Mama of a Hurting Baby

To the sleep-deprived Mama,

You are not alone.

I’ve been there; so tired you almost fall asleep on the toilet.

I hope you find this at 2 am, when you’re desperate for a word of encouragement and haven’t yet slept a wink because your child hasn’t slept.

I’ve rejoiced over 4 non-consecutive hours of sleep a night because for months we had less than that.

I know that the term “sleeping like a baby” was written by someone who was ignorant of what it is like to have a hurting baby.

I, too, was a real-live zombie, in a daze, wandering around aimlessly, looking for a bed. 

I’ve felt your hope as you plan a new strategy to help your baby fall asleep and stay asleep.

I read those books and blogs, and heard the advice of fellow parents. 

We bought the highly acclaimed swings, noise machines, and baby sleep books written by experts; all of which did not work for us.

One by one, tools and advice of experts failed for my hurting child who couldn’t sleep. 

Desperate, we also tried letting baby ‘cry it out’, but with a hurting child,  but it just wasn’t right and the crying went on far too long.

We learned that a hurting child is not able to self-soothe and what it is like to be needed by them to fall asleep.

I have seen a hurting child finally pass out in my arms, and realize it is the only time all day that their body relaxed.

I know how it FEELS to rock a baby so much that your back feels it may break.

I understand that the ONLY reason you can keep rocking them is because you LOVE them. So. Very. Much.

I’ve cradled a child with numb and tingling arms, too afraid to move for fear of waking them up.

I have felt poorly equipped, inadequate, and have sobbed, along with my child, unable to soothe them.

I’ve fallen asleep in that uncomfortable chair, freezing cold because you can’t reach the blanket, with my bladder about to burst, because I know if I move they’ll wake.

I know that you, too, would sacrifice your health, body, and sleep if it meant your child would feel better.

I have felt what it is like to be so tired, having given all your energy to the child, that you’ve forgotten to eat, or drink anything all day.

I tried to sleep when the baby slept, but a few 1 hour stretches at night were just not enough. And I know that when you work during the day or care for another child, that napping when the baby naps is not realistic.

I know the feeling of exhaustion that goes down into your SOUL.

And for those days to go on for MONTHS and MONTHS.

I heard my friends boast of how their child slept well from “the night they brought them home” and wondered what was wrong with us.

I know that until you’ve had a hurting child and experienced the sleep-deprivation it can cause, that you can feel entirely alone, misunderstood, and that you may fear it will. NEVER. end.

Seeking help, I took my child to the doctor and cried in the office.

I know how vulnerable it feels to have a public break-down and how grateful I was to the nurses, doctors, co-workers, family and friends who spoke kindly and encouraged me.

I know what its like to truly worship sleep and to be unable to focus on anything but the next chance to get some.

And, I too, reached the point where even when my baby slept, I stopped being ABLE to sleep.

As I laid my sleeping baby down, exhausted, a surge of adrenaline pumped through my veins as I slowly backed out of the room and closed the door. I was hypersensitive to ANY sound that might wake the baby. 

I, too, collapsed into bed only to hear my child’s baby grunts and noises that all babies make in their sleep.

I know that with each sound, a fresh dose of adrenaline surges and that fear that the baby will wake can steal ANY sleep you might get before the crying begins again. 

After months of sleep deprivation, I, too, heard my baby’s cries in the white noise of a fan, in the background of a football game, or the sound of the shower running, and wondered if I was a crazy person.

With nowhere else to turn, I relied on the Lord to carry me through those nights where I cried as much as my child. 

I too prayed those persistent prayers for sleep and for healing for my child. In our case, I prayed that his heartburn and acid reflux would cease and he would no longer hurt.

It took 15 months for those prayers to be answered.

 

BUT, Have hope.

My prayers WERE answered.

I have awoken to light streaming through the window and felt the seizing fear that something bad had happened.

And then I felt the JOY and RELIEF when I found the baby still asleep.

We slowly saw a few sporadic 4 or 5 hour stretches of sleep mix into the sleepless nights.

We saw a few long stretches turn into regular occurrences.

After months of a few hours of broken up sleep a night, I know that a 4 hour stretch can make you feel like a new mama.

As the long stretches turned into sporadic nights of 8-hour stretches, I know that at first, you wake up, wondering if something is wrong.

I also know, that at some point, you will realize that you had two nights in a row, then three, and then a week of good sleep. 

For us, it was sudden. When my son walked at 15 months, I felt the elation of our first full night of sleep. It didn’t take long for it to be a regular occurrence.

It did take time some time for me to feel refreshed, despite full nights of sleep. It takes some time for your body to catch up. Be gentle with yourself.

Looking back, I cannot begin to fathom how we even survived, but I can tell you, we did only by the Lord carrying us through it.

My son’s name is written in my Bible next to this verse, and it is imprinted on my soul after saying it over and over, half-asleep and weary.

I remember you upon my bed,
    and meditate on you in the watches of the night;
for you have been my help,
    and in the shadow of your wings I will sing for joy.
My soul clings to you;
    your right hand upholds me. 

-Psalm 63:6-8

God IS hearing you.

He IS helping you.

He IS holding you up, as you struggle to stay awake and to comfort your child.

He IS equipping you to parent, work, and function, despite severe sleep deprivation.

 

Until Then

If you are reading this with red, stinging, tired eyes that you can hardly keep open, take heart, sleep is coming. 

If your child has reflux (GERD), and it is not responding to medication as our son didn’t, cling to the promise several doctors gave me and was TRUE for us: when your child walks, everything changes. The muscles develop, the pressure lifts from their stomach, and sleep comes.

This. Shall. Pass. I’ve experienced it.

Your child WILL sleep through the night, even if it feels like it may never happen. 

It will not be as soon as you’d like.

It will take you by surprise and suddenly life won’t seem like such a BLUR.

Your view of sleep will never be the same.

Even today, my son is 4 years old, and has slept through the night since 15 or 16 months. I still wake most mornings, grateful that my children slept all night long, and for their health.

When sleep comes, it will bring with it WAVES of gratitude.  

But, for now, cling to hope.  Be encouraged.

Keep loving your child.

If you feel like you’re just surviving, that is OK.

You are doing ENOUGH and I have no doubt that you are doing a GREAT job.

You are not alone.